Vivace: The Update...

I have been putting this off for some bit...I have so many emotions in even saying his name. Right now, if you follow us on facebook, you know that the secondary insurance has approved him for long-term residential care. This allows the secondary insurance to pull from a different pot of money. It actually falls under the same category as adults with disabilities that often live in group homes and have around the clock care. That was a pretty solid victory towards allowing him to stay at the facility until he is ready to be in a home and family environment. I called it "half the golden ticket."

Today at 1pm, there is a pretty large meeting across a few different organizations. Vivace will be participating in part of that meeting via videophone. This is the beginning, or on-going, battle to have his "long term residential care" continue out-of-state where he is located. It seems so simple to me:

1) Does NC have any mental health facilities for the deaf and hard of hearing? NO
2) A child that honeymooned for 2 months and it just now starting to understand the program and show his true personality and talk about his past and is attaching to staff and peers, a child that has Reactive ATTACHMENT Disorder should be yanked from this facility and put in a new one? NO


So, why would he be moved anywhere? Money, it all comes back to money. Who is paying for it, how it was ordered, who is getting it approved.

I was told this meeting is my chance to plea my case. So, today in front of 12-20 strangers, I will be reliving, retelling, re experiencing the last 2 and half years....

"Base Dispatch, how can I help you?"*deep gulp* hand trembling, lump in my throat.....Yes, hi, I, um, my son...my son is almost 10...he had a rage fit, yes rage-anger, he smacked himself repeatedly, he was manic and screaming and threatening my life, threw blood on the ceiling...he is calm now but I need an MP(Military Police) or someone or something, I need someone, I need...I need to get him to the ER, we have to get him help, we have to do something, he can't live like this, I can't live like this, I don't know what he will be like when he wakes up...what will he do next? Please...I need someone to come to the house, I need help, please....

It may have happened in May, but it is still fresh like the morning dew....TriCare ends on Nov 6th and it will mark 150 days that Vivace has been there.

Yet, he has so far to still go....

hitting staff,
hitting peers,
kicking,
raging,
screaming,
threatening,
pounding tables,
triangulating adults,
losing privileges,
manipulating,

...we all have so much healing to still do.